![]() ![]() They have also been found to be interested in being involved and contributing to society (Hersh, 2013a). Similarly, Schneider ( 2006) emphasized that despite their vulnerability, people with deafblindness have a range of strategies to adapt to the challenges inherent in their situation (Schneider, 2006). Isolation and social exclusion are a common consequence, as are restrictions in terms of activity and increased risk of physical harm (Möller, 2008).ĭespite the challenges described above, a systematic review revealed that persons with deafblindness do not view themselves as permanently vulnerable, but research tends to focus on negative outcomes instead of exploring positive risk taking, coping capacity and resilience (Simcock, 2017). ![]() Möller ( 2008) states that the functional limitations in hearing and vision present in deafblindness lead to a vulnerable situation, due to the difficulties in accessing information and in face-to-face interaction with other people. The situation of persons with deafblindness has also been referred to as a constant ontological insecurity (Danermark & Möller, 2008). Stigmatization has been reported in relation to the use of mobility and communication aids (Hersh, 2013b). People who become deafblind have been described in terms of interactional powerlessness, vulnerability and struggling hard to adapt in a world that is sometimes perceived as hostile (Schneider, 2006). The situation of persons with deafblindness has been studied, showing psychological distress, unmet needs and lack of formal support (Bodsworth, Clare, Simblett, & Deafblind, UK 2011). To help compensate for the combined vision and hearing impairment, especially the tactile sense becomes important …” (Nordic Centre for Welfare and Social Issues, 2018) It affects social life, communication, access to information, orientation and the ability to move around freely and safely. To varying degrees, deafblindness limits activities and restricts full participation in society. Thus, deafblindness is a distinct disability. “Deafblindness is a combined vision and hearing impairment of such severity that it is hard for the impaired senses to compensate for each other. The Nordic definition of deafblindness states: The study demonstrates that people with USH2a manage in many ways, and metaphorically, by “taking the helm”, they strive to actively navigate towards their own chosen values.ĭeafblindness, also known as dual sensory loss, varies in diagnosis, onset, auditory and visual abilities. Two sub-themes: resolve or prevent challenges and comforting oneself was abstracted forming a theme “being at the helm”.Ĭonclusion: The findings show that people with USH2a have a variety of life strategies that can be interpreted as highlighting different aspects of psychological flexibility in a life adjustment process. Results: The content analysis resulted in seven categories remaining active, using devices, using support, sharing knowledge, appreciating the present, maintaining a positive image and alleviating emotional pain. Fourteen people aged 20–64 years (4 women, 10 men) with USH2a in Sweden participated in focus group interviews, which were transcribed and analysed by qualitative content analysis. Methods: The study had a qualitative explorative design. From a clinical point of view, it is of importance to balance this picture, with an increased knowledge of life strategies. People with deafblindness are often described in terms of poor health and low quality of life, or as being vulnerable. Purpose: To explore life strategies in people with Usher syndrome type 2a.īackground: There are no studies on life strategies in people with Usher syndrome. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |